Last year, in the midst of chaos and divorce, I discovered that I had developed a new brain lesion. Unlike the other lesions, which seemed to mostly affect the more physical aspects of my life, this new lesion took it upon itself to change the very essence of who I am by causing damage to my frontal lobe. At the time of the MRI findings, I forced myself into a state of denial and told myself that I was still me and that I was doing what I needed to do to live a happier, healthier life. I knew I didn’t feel well, becoming nauseous daily, losing my appetite completely, losing 70 pounds without trying, but I thought the solution was divorce- After all, it had been ten years since P’s infidelity and I was still sad about it. That was a good enough reason, right? (Eye roll) Looking back, I’m terrified by how emotionally detached and impulsive I became. If you know me, you know that I am incredible at overthinking everything. Furthermore, it terrifies me how no one noticed the changes.
I reacted and then I just let go. Of my humanity? My family? My life? All of it. I let go.
I didn’t think anything through. I didn’t think about how much these decisions would affect every single aspect of our lives. How S (our daughter) would lose her family as she knew it. How P and I would lose each other after years and years and years of LIFE together. I knew while going through the divorce, that it was not what I really wanted, but I convinced myself that I needed to leave P in order to find something (honestly still not sure what that something is) to complete my life. Sometimes I wonder if I wanted to leave him before he could hurt me again or before he could say that my MS was too much of a burden. I don’t know, but I felt numb, out of control, angry, sad and confused about life. Prior to the divorce, I begged P for change to some of his behaviors, but of course who wants to change for someone that did absolutely nothing to change themselves. I went to therapy but I don’t think I really ever focused on what needed to be focused on. I admitted to P that I was lonely and having unwanted feelings for someone I shouldn’t have, and pleaded for any help, therapy or direction so we could grow from this and not go through the fallout that occurred from P’s earlier infidelity and lies.
Rather than us trying to fix things, we both became spiteful in our own ways. Our egos, along with so many miscommunications, anger, avoidant behaviors and jealousy, destroyed us. We both put ourselves in situations with other people when we should have been trying to repair our relationship. And while we both made a lot of mistakes, I feel like what I did was much worse. I justified my eventual relations with the mutual friend by saying that I told P about my feelings, he didn’t care and we were getting a divorce. I didn’t put much more thought into my actions. I felt really bad, but it was justified in my mind because I liked the guy and I was getting a divorce from a man that said he wasn’t going to fight for me. Even my therapist made me feel like it was okay. And maybe on paper it was, but it wasn’t okay because I hurt people I care about deeply. Looking back I wish I had asked for more help, I wish I had listened to my body, I wish I had fought for our marriage and family, but instead I neglected everything that matters to me.
Ironically, it wasn’t until I suffered multiple broken bones, torn ligaments and a concussion from being run over by a car in a crosswalk almost two months ago, that I finally “woke up” for the first time in well over a year. Yes, that really happened and yes, Tesla’s are heavy, fast and they fucking hurt. After the accident, the brain fog that had become such a normal part of my daily life disappeared and I could finally see the extent of damage my decisions, anger and sadness had made. It wasn’t until I spoke to my neurologist, and later a therapist, that I learned how much frontal lobe lesions can affect decision making and personality. And there’s nothing more terrifying in this world than hearing that your brain could do it again. But even with this information, I still blame myself and hate myself for my decisions way more than the disease.
At one point in recent months P placed a restraining order against me after an argument where my goal was to apologize and share my feelings and regret, but when I felt unheard and unseen I got emotional said some mean things and told him I was going to tell his boss and new girlfriend what kind of man he is. That statement ended up costing me any feeling of control over my life or S’s, as well as a few thousand dollars necessary to pay a lawyer to represent me. And because the restraining order never disappears from my record (even though he dropped the order), I lost the ability to apply for any government positions ever again and it makes it more difficult and expensive to retain a teaching license. It’s heartbreaking and disgusting how we have treated each other after being each others people for so long!
It’s so frustrating because every day that I waited for the divorce to be finalized, I thought about going to the courthouse to withdraw the divorce papers. I wanted to fight for our marriage, I wanted to cave, give in to my love and our story. But I was mad and I wanted P to fight for me, to prove his love for me in some unrealistic, bullshit way (And yes, I realize how immature and unrealistic that is now). So, days went by and eventually the divorce was finalized. I felt regret and sadness but I did nothing to stop it. Some days I feel like I just put my entire life on a one way trip without me. I made outrageous and selfish decisions that haunt me and have left me incredibly sad, angry, lonely, confused, financially struggling and missing the hell out of S when she isn’t around.
A friend told me last week that she is proud of me, but I wish she knew the full truth. We haven’t talked in a while and I haven’t seen her since January, so her statement was based on carefully selected Instagram content that insures no one finds out I am completely miserable and losing my mind. There’s no way to explain the pain you feel when you go from spending 24/7 with the child you nursed for 3.5 years and was a stay-at-home-mom with her for over five years, to only seeing her for half of her time as a human. And the same goes for P. He was never a stay-at-home-parent, so he’s spent even less time with her than me and now he’s spending less than that. This is my fault and I don’t think there’s a thing in the world that could ever do to repair the damage I did.
Everyone keeps telling me it will get better, but there are no words for the depth of sadness that you feel when you hug your daughter and then she leaves for days with the person that was once the love of your life and that person won’t even look you in the eyes. The person that you loved unconditionally, laughed with endlessly, entrusted all of your secrets and insecurities, served in the military with, married, went to college together, experienced a miscarriage together, the birth of a child, moving 10000 times, horrible diagnosis’, postpartum depression, and every happy (and sad) moment, big and small, for 17 years.
I have a very difficult time seeing Paul when we exchange Stella and get mad at him over the most ridiculous things when all I really want to do is hug him and tell him how much I love and miss him. I try to hold back my emotions, but they end up boiling over every single time. He seems better now and that’s really all I could ever want for him, but it’s still so hard. It’s hard to experience new things without him. It’s difficult and heartbreaking to do fun activities with Stella that I want to experience as a family, knowing he’s at home or out living a happier life somewhere. I hate it, but my own brain and my own choices are the only thing I can blame or control.
Turns out that “in sickness and in health” gets complicated when you have Multiple Sclerosis and your own brain turns against you.
I am still learning how to be a mother, a co-parent and a woman—with a frontal lobe that sometimes betrays me, a body that won’t always cooperate, and a heart that deeply aches for what I’ve lost. I’m learning how to live in the ruins of the choices I made when I wasn’t fully myself.
I wish I could go back. I wish I could take it all back. But since I can’t, all I can do now is move forward—with honesty, with effort, with love (and hopefully with a lot less tears).






